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The Sickle Cell Society , established as a registered charity in 1979, was founded by a group of people with sickle cell disease, their parents and their physicians, aims to improve understanding and management of the condition.
SCDAA is a nonprofit organization that supports research, education and funding for sickle cell disease and related conditions. It has over 40 branches across the US and hosts events such as the National Sickle Cell Walk and the Sickle Cell Disease National Convention.
Sickle cell disease is a group of blood disorders inherited from both parents, causing abnormal red blood cells that can lead to pain, anemia, infections, and organ damage. Learn about the symptoms, diagnosis, treatment, and prevention of sickle cell disease and its subtypes.
The Food and Drug Administration on Friday approved a powerful treatment for sickle cell disease, a devastating illness that affects more than 100,000 Americans, the majority of whom are Black ...
A sickle cell health crisis can escalate into life-threatening complications, but patients still struggle to get seen quickly in emergency rooms and also to get pain medicine.
Sickle cell trait is a condition where a person has one abnormal allele of the hemoglobin beta gene (genotype AS) and produces both normal and abnormal hemoglobin. It is associated with some resistance to malaria, but also rare complications such as sickle cell crisis, renal medullary carcinoma, and urinary tract infection.
Manual red cell exchange. The exchange is performed manually. It refers to manually phlebotomizing a percentage of the patient’s blood prior to or concomitantly with giving a red cell transfusion. [citation needed] Frequency of red cell transfusions. Red cell transfusions can be further classified as episodic or chronic.
Voxelotor is the first hemoglobin oxygen-affinity modulator that increases hemoglobin levels and decreases hemolysis in sickle cell patients. It was approved by the FDA in 2019 and by the EMA in 2022, and has common side effects such as headache and diarrhea.